THIS IS LIVING is a collaboration of organizations who recognize that chronic conditions are a worldwide concern affecting individuals, their loved ones and society at large. We want to make a difference and help improve each day in some way. Small steps, big aspirations. THIS IS LIVING is about Inspiration, Tips and Advice, and Community.
FEATURED PROGRAM
Out of Bed Starting Each Day Better
Bed-Stretching With Roger Frampton
Bed-itation With Rosie Acosta
Start the Day with Flavor
Morning Walk Stretches with Roger Frampton
STRETCHES WHILST YOU WALK
A daily walk is one of the best ways to exercise and recent studies suggest that being out in the fresh air amongst nature improves mood and focus. Roger Frampton, Movement Coach, has created this guide to ‘Stretching Whilst You are on a Walk’ to encourage flexibility and better movement.
Roger believes just a small amount of stretching keeps our bodies open and reduces that feeling of stiffness and tightness. So, do give these a try next time you are out, and integrate them into your walks.
Light Stretch. Upper Body
This is a stretch that can help improve your posture and keep your body open. Firstly, find a post, (you can do this on a wall also). Place the elbow roughly around shoulder height. Please don’t go high if you feel any joint pain, and work at your own pace. Then add a very gentle twist away from the surface for a shoulder opening stretch that will help you improve your posture and feel more open. Try holding the stretch for 30 seconds on each side and taking an exhale as you twist into the stretch.
Light Stretch. Lower Body
Raise one leg onto a low surface, a bench would be perfect, put both hands on top of each other on the thigh you have raised whilst lightly pressing down hold the stretch for 30 seconds then swap legs. If this feels too much try keeping the leg bent, and try to work towards straightening the leg on your daily walks. If you don’t feel stable, hold on to something with one hand, and use the other for the step, if there isn’t anything to hold onto and you don’t feel confident do this one at home where you can ensure your stability.
Inspiration
We often share similar daily challenges, feelings and emotions – the fact is we are more alike, than different. Here is some inspiration to empower, motivate, help with gradual gains, which can improve quality-of-life. Watch a range of videos for the body, mind and soul, from the practical to the heart-warming.
Movement Class #1 With Roger Frampton
Movement is for ALL – especially those living with chronic conditions. Some fundamental exercise can better the body no matter your fitness level or ability.
Mindfulness in Everyday Life With Rosie Acosta
You may think mindfulness is just one of those ‘buzz words’ but it can actually be a powerful tool for self-care and developing better thought processes as well as a sense of fortitude.
Focus and Clarity Sound Bath With Sara Auster, Wellness Coach
A Sound Bath is a deeply immersive full body listening experience that invokes gentle yet powerful restorative processes to help you relax, self-soothe and wind down.
Feel Empowered in Your Healthcare Consultation
A meeting with your healthcare professional is an opportunity to get expert advice and care for your chronic condition. Guarantee good use of that time by taking these active steps to fully prepare for your visit.
Movement Class #2 With Roger Frampton
In this exclusive follow-along video for THIS IS LIVING, Roger shares the core principles of his ‘conscious movement’ philosophy.
Journaling To Help With the Mental and Physical Effects of Chronic Illness With Rosie Acosta
Regular diary writing can be beneficial in feeling in control, managing emotions, encouraging self-reflection and prioritizing goals.
Relaxation Sound Bath With Sara Auster, Wellness Coach
Sara Auster’s second and exclusive sound bath for This Is Living is for genuine committed relaxation.
Tips & Advice
Little changes and little encouragements can help transform a moment, a mindset, or nudge us to healthier habits. Whether you have a diagnosis, or have family or friends with a chronic condition, here are some tips to help. There are general tips for all, and also, tips that relate to specific conditions, of which you may have one or more, and can select.
Many people struggle with motivation for self-care. That’s normal, so if everything hasn’t been going perfectly, don’t be hard on yourself. With a few small tweaks, you can take real steps toward better self-care without even leaving the house.
Let’s Breathe
Living with a chronic condition isn’t easy, so have mercy on yourself. Instead of comparing yourself to others, try comparing yourself to who you were yesterday, and who you’d like to be tomorrow.
Make Friends With Technology
If you’ve never used technology to improve your health, now’s a great time to try. You can ask your doctor about setting up a remote appointment, find helpful online resources, or use mobile health apps for your specific condition. Technology can be a wonderful addition to your health routine.
Remember You’re Not Alone
We are social beings. Check in with friends, have a virtual appointment, or take a walk around the block—the more social interaction, the better.
Celebrate Little Things
Minor accomplishments deserve major praise. Set small, achievable goals as you work toward something bigger. Even if it takes a few tries, don’t let setbacks get you down.
Your Routine, Your Way
We’re all creatures of habit, so let’s make some good ones. Change doesn’t happen overnight, and every small step is a success. Take your time and go at your own pace, because there’s no rush.
Staying Well With Scleroderma
There may be more ways to manage your Scleroderma than you realize. Making healthy food choices, being active, managing your stress, and quitting smoking are all daily choices you can make, but ask your doctor if you'd like to learn more about what you can do.
Let’s Get Moving
When you’re living with diabetes, every little bit of movement can go a long way. Try walking that extra lap around the block or doing a little workout in the living room, because it helps to keep things moving.
Stay Ready To Go
Sometimes it’s the little things that make the biggest difference. Something as simple as setting up your pill box for the week can help keep you on track while also giving you greater peace of mind during your treatment journey.
Check This Out
Proper information can be your best ally. When performing regular checks of your blood sugar, you can feel confident knowing that you’re tuned in to what’s happening with your body and are equipped to take on the day ahead.
Celebrate Little Things
Little wins deserve major praise. Your journey is built on a foundation of small steps that add up to something greater. Behavioral science says it takes 66 days for behavior changes to become habits, so embrace gradual work and the results will follow.
Bring In the Good
Keeping the right diet is an imperfect process. It’s very normal to start small and work toward a healthier eating routine by cooking more at home and focusing on your daily water intake. It’s not unlikely that before long, you’ll be eating well and feeling even better.
Your Routine, Your Results
Set your heart health routine in motion by sticking to a medication schedule and pattern that works best for you. Try setting a daily alarm or utilizing a pill box to help keep you on track. Create a routine that fits with your unique needs and daily rhythm.
Just The Right Stuff
Eating healthy doesn’t just feel good, it can also help address your chronic kidney disease. Consuming foods that are lower in salt and adding more fruits and vegetables into your diet are easy ways to boost kidney health.
Onward and Upward
One small step toward a more active lifestyle can be a leap in your journey with chronic kidney disease. Start a workout plan that fits your own abilities and comfort levels. Slowly but surely, you'll meet your personal fitness goals.
Out With the Bad
Dealing with chronic kidney disease is never easy, but you’re tougher than most. Difficult lifestyle adjustments like cutting out smoking or limiting your alcohol intake can greatly improve your overall kidney health.
Edit Your Grocery List
What’s on your plate impacts your liver health. There are delicious replacements for red meat, dairy, eggs, butter, cheese, foods high in salt, and more. Talk to your doctor about the right diet for you.
Fight It With Fitness
Staying active keeps every system of your body going strong, including the health of your liver. Even small but steady levels of exercise like a walk around the block can help.
Kick These Bad Habits
Alcohol and tobacco are damaging to your health, and alcohol-associated liver disease is a danger all its own. Changing behavior with addictive substances isn't easy, but the benefits are profound. Talk to your doctor for support.
Map Your Mobility
Staying active is important for anyone’s health. But milestones vary greatly, and one person’s stroll is another’s marathon. And that’s ok. Set goals that make room for your condition. Success is measured on your own terms.
Focus on Your Breath
Practicing yoga or other breathing exercises can strengthen breathing muscles and calm the mind. Yoga comes in every degree of intensity and subtlety, meaning anyone can enjoy its psychological and physiological benefits.
Take Control of Your Climate
Depending on your condition, factors like warmth or humidity could have a significant impact on your health. After consulting your healthcare provider, consider whether small environment adjustments in your home could help.
Make Room for Your Condition
Does your home make room for your condition? This could vary greatly from person to person, but it might include a permanent spot for a to do list, calmer lighting, plants, setting timers, or simplifying your closet to reduce decision fatigue.
Go Easy on Yourself
When you look in the mirror, remember you’re far more than your condition. Take this time away from the distractions of social media to reflect on how you’re feeling. Your condition may be part of what makes you unique, but it doesn’t define you.
A Clean Home Helps Clean Your Mind
A little light housework can really clear the mind. No need to worry about a deep clean. Just take note each day whether there’s a small task that could make your home a tiny bit better.
Love Your Meals
Nutrition gets avoided when it feels like a punishment. Be thoughtful about your body’s fuel but be careful about an all-or-nothing mentality. Make meals you’ll love that will love you back.
10 Minutes of Meaningful Movement
Ease into being more active. Vigorous exercise like running can do a lot of good, but first find your own rhythm. A simple daily walk around the block will clear your mind and start you on a healthier journey.
Keep Calm and Slumber On
Stress and poor sleep can worsen other contributing factors to obesity. Seeking tools to manage life’s tensions and getting the rest you need can amplify other efforts and boost overall well-being.
Staying connected to each other is essential. It’s true with our personal lives, our professional lives, and certainly with our health. Your friends and neighbors can help you stay on track—and in turn, you can inspire them through your healthy actions.
Tell Your Story
If you have a health and wellness success story, even if it's small, share it with your friends and loved ones. Did you reach your daily steps goal? Did you keep a positive outlook throughout the day? Those closest to you are waiting to celebrate you.
Re-engage at Your Own Pace
Communities have reopened, your neighbourhood may look quite different than it did a year ago. Approach life in a way that feels comfortable for you. Wearing a mask is an acceptable norm.
Strength in Numbers
There are plenty who share your joys and challenges. Official advocacy organizations and local support groups alike have your back, whether you experience hurdles in the workplace or simply need some emotional support and encouragement. Never forget the power of your community.
It’s Okay To Ask for Help
After a period of isolation, life is returning to how it was for many, but slow steps to safely connect again are beneficial. Don’t be afraid to ask a neighbor for help or offer the same to them. There’s no rush, people are understanding.
Support Is Everywhere
Some autoimmune conditions are rare, but that doesn’t mean you need to face them alone. Local, national, and even international support groups are here for you. From practical advice to warm welcomes and empathetic ears, there’s a support group for you.
Let It Out
It is entirely understandable to be anxious about the risks of the pandemic, even now. You have more on your plate than some. It’s OK to talk to family and friends, because they’ll likely appreciate protection and caution is still important.
Speak Up
You’re not in this alone. When living with diabetes, it’s important for those around you to know what you’re dealing with. Start an open and honest dialogue with the people close to you. You'll all be grateful once you have.
Like Minds Are Here for You
Finding support through uniquely shared experience can do wonders. We know that living with diabetes can be mentally draining, but finding a community that truly understands what you're going through will help lift you up.
We’ve Got Your Back
Sometimes we gain a lot by losing something. Controlling your weight through better eating habits and a more active lifestyle can help shed a few pounds and improve overall health. Boost yourself and your friends as you work toward reaching your fitness and dietary goals.
Hearts Beating Together
Your experience is shared. Because heart disease is one of the most common chronic conditions in the world, you’re never in this alone. A wealth of online and in-person support groups are waiting to welcome you and provide a space that grows stronger together.
Lift Each Other Up
Community can work wonders for the heart. Friends can do a lot of help for each other by encouraging heart health. From cooking healthy meals together to forming exercise groups, it’s always easier when someone has your back.
Get Back Out There
It’s only normal to have felt a little cooped up lately. Great things are waiting just outside your door, so take the opportunity to soak in the sunshine or take a stroll through nature for a little fresh air.
Strength in Numbers
Working out is challenging, but everything’s a little easier with friends. Support your kidney health through exercise and maintain a healthy weight by reaching out to friends and family to start your own workout groups.
You’re Among Friends
Living with chronic kidney disease can be difficult for many to understand, but there are plenty who do. Join in-person or online support groups and you'll find a space where you’ll feel completely seen.
Always Speak Up
Managing your chronic kidney disease can mean setting expectations with others. Don’t be afraid to tell those around you what your limitations or preferences are so they can be there for you.
Watch Out for Social Pressure
Many of us might be guilty of being a "social smoker" or having a few drinks at a party. It's a challenge to stay mindful, but doing so allows you to enjoy time with friends while maintaining your health.
People Want to Hear
Sharing both concerns and victories with family, friends, or a therapist can be crucial for meeting goals and maintaining emotional well-being. Even if it’s just a few people you keep close, decide who’s going to be on this journey with you.
Join A Cooking Class
Diet is a major part of liver health, so why not make that a joyful experience you can share? Health-focused classes will teach you how to eat right without sacrificing taste, and you’ll hone culinary skills you can be proud of and show off.
Reach Out
Isolation is a common feeling for the millions with a chronic lung condition. There are support groups you can join in person or online, and family, friends, or therapists to speak with. Don’t forget the many ways to connect.
Don’t Be Shy
Our therapies, medications, and other support systems are there to keep us engaged with our lives. Every time you publicly use your inhaler or portable oxygen, or simply share why you need to pause for a moment, you normalize it.
Skip The Queue With Delivery
Your local grocer and other shops offer delivery services to limit the exhaustion of extra errands. Find out which trips will get you some fresh air and conversation, and which have teams ready to save you some energy.
Your Voice Deserves To Be Heard
You’re one of the best advocates for getting your community to understand your condition. Whether decreasing its stigma or helping others going through something similar, there’s much to be gained by sharing your story.
Find Your People
There are plenty of people who share your joys and challenges. Connecting with them can help both you and them tremendously.
Give Back
For many people, volunteering is a great way to find new friends and build that sense of purpose. Look up some organizations in your own backyard and you’ll be sure to find one that speaks to you!
You’ve Got Support
There are groups available for treating the many aspects of obesity. From emotional support to guidance on meeting nutrition and fitness goals, plenty of people are ready to help and also welcome your help.
Vent
Living with obesity can feel overwhelming. Open up with those who share your struggle, as well as with those who don’t. You might bond with someone who is on your same path, or promote education and empathy with someone who isn’t.
Promoting Body Positivity
There are many body types and you have the right to feel good about yours. Obesity is a serious condition. But while working on your health, you can also promote acceptance beyond an ideal. You have every reason to celebrate yourself and your body.
The medical community exists to help you and wants to see you, so keep up a steady dialogue with your healthcare team. You’ll optimize the care you receive, and your team will have a fuller understanding of your situation.
Schedule Other Appointments
Many people may have put off appointments this past year, both related and unrelated to their chronic condition. It’s understandable, but it’s time to start looking forward again. Try to plan ahead by booking flu shots and checkups for yourself and your family.
Visit Your Pharmacy
No one is more deserving of care than you. Catch up on prescription refills, check for prescriptions that may be expiring, and ask your doctor or pharmacist about any financial support options that may be available.
Stay In The Know
Ask your doctor or patient organization about any new treatments that may be available or on the horizon. You might find a treatment that suits you—or, if you’d like to participate, clinical trials may be enrolling new patients.
Protocols To Protect You
From your general practitioner to specialists, safety protocols are in place for the pandemic to put the needs of patients first. But for absolute peace of mind, contact your clinic for more information. It’s your right, so don’t be shy!
You’re Prepared for Anything
A health consultation can sometimes go quickly. In the moment, you may forget to get the answers you need. Write down your questions before a visit to ensure you always leave more informed than when you entered.
No Time Like the Present
We all procrastinate sometimes. And it can be easy to put off a visit to the doctor if it doesn't feel like an emergency. But don’t delay seeking treatment. Starting sooner rather than later is always the best approach.
One Amazing Resource
Living with diabetes can be a lot more manageable with the right team. Get the most out of your doctor and healthcare team by asking any questions you might have in order to create an open, honest relationship.
You Deserve the Best
The best possible care is within reach. When working with professionals to manage your diabetes, don't be afraid to ask about the latest available treatments. Also be sure to ask about what other tools, resources, and apps may be helpful on your journey.
Stay In the Know
You don’t have to be an expert on your condition to feel on top of it. Whether going through your lab results or keeping a record of notes from your doctor’s visits, you can gain more confidence by slowly building your knowledge.
Write It Down
From your general practitioner to specialists, safety protocols are still in place post-pandemic. But, for absolute peace-of-mind, contact your clinic for more information. It’s your right, don’t be shy.
Really Great Question
A health consultation can sometimes go quickly. In the moment, you may forget to get the answers you need. Write down your questions before a visit to ensure you always leave more informed than when you entered.
Keep Things Open
We all procrastinate sometimes. And it can be easy to put off a visit to the doctor if it doesn't feel like an emergency. But don’t delay seeking treatment. Starting sooner rather than later is always the best approach.
Hit Your Target
Good blood pressure is vital for your kidney health. Ask your doctor what your blood pressure target should be and what options you have to meet it.
Now That’s a Plan
It always feels good when a plan comes together. This is especially true when it comes to healthier eating, so try working with a dietician on setting up a kidney-healthy eating plan that will keep you on track.
Stay In the Know
Make sure to get the most out of your checkup. Whether you’re at risk for chronic kidney disease or already have it, ask your doctor about all your treatment options so you get the testing and information you deserve.
Tests Are Best
Measuring the health of your liver is a routine, not a one-and-done situation. Make sure you follow your doctor’s advice for blood tests, biopsies, scans, and other metrics for tracking your health.
Consider Vaccines
If your liver is in poor health, you may be more susceptible to diseases like the flu or Covid-19. Thankfully, vaccines can either prevent the likelihood of contracting them or drastically reduce the harm they’re otherwise capable of.
Understand Your Options
A wide range of treatments are available for treating different liver diseases. These can range from lifestyle changes to medications and surgery. Speak openly with your doctor and learn the risks and benefits of your own options.
Empowered With Options
Therapies, procedures, medications, clinical trials, and lifestyle changes are all potential treatments for your condition. Ask for the full range of choices, including the risks and benefits of each, so you’ve got the clearest picture possible.
Mental Note
Don’t forget, a chronic lung condition can take a psychological toll. It’s not uncommon to experience a range of emotions, like sadness or anger. Professional support can give you tools to understand these feelings, improve your outlook, and live life to the fullest.
Plan for Prevention
Measures can be taken to reduce the chance of flare-ups or pneumonia. Getting an annual flu shot if you’re able to do so, avoiding touching your face, and washing your hands are just a few easy actions which can help. Talk to your doctor for a full prevention plan.
Ask Away
When did you last talk with your doctor? A regular discussion with them is an excellent way to explore every curiosity about your condition and stay on track. And remember, there are no wrong questions.
Get the Full Picture
Unsure if something in your life relates to your condition? Don’t assume it isn’t relevant to your healthcare professional. It’s always good to share to get the clearest assessment possible and tools to thrive.
Know Your Options
Many conditions have a range of potential treatments. Talk to your healthcare professional about all possible options and get their perspective. You’ll be more informed and confident about your choices.
Balancing Health. Not the Scale
Weight can be an indicator of physical condition. But the goal isn’t a number. With exercise, you could put on pounds, since muscle is denser than fat. Talk to your doctor about comprehensive health.
It’s Not Always Your Weight
Obesity can take a toll on many of the body’s systems, and it’s critical to address it. But sometimes it might be something else. Whether a pinched nerve or difficulty breathing, tests can determine if it’s related to obesity or not.
Discover Your Risks
Genetics, nutrition, exercise, lifestyle — many factors contribute to obesity. Your doctor needs the full picture. Share your diet, your daily routine, and your family's health to identify a more individualized treatment plan.
Downloadable Resources
We’ve put together a selection of resources that can be helpful. Each is designed to give you practical lifestyle tips on your journey toward a healthier life.
Community
Our Partners
Together we aim to support those living with chronic conditions, providing knowledge and experience from a variety of perspectives. This website has been developed by Boehringer Ingelheim International GmbH in collaboration with representatives from the following patient organizations and others, to improve quality-of life. Click on a Patient Organization logo for more information.
Our Partner Organizations
Active Citizenship Network
With a mission to promote and support the construction of an "active citizenship" in Europe, the Active Citizenship Network is a flexible network of European civic organizations. It strives to integrate the voices of citizens directly into policymaking in order to better serve their needs and work toward the common good.
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EASO ECPO
ECPO, the European Coalition for People living with Obesity, works collaboratively across Europe to improve the lives of people, and who are living with and who are affected by the chronic disease of obesity through advocacy, policy, and education.
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ELPA
For the European Liver Patients' Association, the goal is clear: to raise up those living with liver disease. From Promoting aswareness and prevention to providing helpful resources and advocating on their behalf. ELPA stands firmly in the corner of people with liver disease.
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EU-IPFF
EU-IPFF aims to be the united voice for patients with Pulmonary Fibrosis (PF) in Europe. By raising awareness, providing disease education, advancing care, and supporting research, EU-IPFF is a trusted resource and ally for those with PF.
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FESCA
FESCA (Federation of European Scleroderma Associations) is an umbrella group of scleroderma patient support and advocacy organizations, and is based in Europe. Their objectives include creating greater awareness of scleroderma through the active involvement of politicians and pharmaceutical companies, and working with doctors to secure earlier diagnosis and better treatments — so that those who suffer from scleroderma can access proper, equitable care.
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GAMIAN-EUROPE
Advocating for the rights of those affected by mental health across Europe, GAMIAN is a non-profit organization that raises awareness, educates, and leverages partnerships to decrease stigma and discrimination and strengthen patient rights.
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LUPUS EUROPE
LUPUS EUROPE envisions a world where everyone affected by lupus can feel more empowered. As a tireless partner for anyone affected with lupus throughout Europe, LUPUS EUROPE provides unwavering support, helpful resources, and a focus on developing better patient-centered processes. For too long, people suffering with lupus have gone unheard, and LUPUS EUROPE aims to be their voice.
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Obesity UK
Obesity UK is the leading charity dedicated to supporting people living with obesity, and representing their voice to health services, government, the media, and the general public. Obesity UK members form a mutual support group and provide a valuable link between those who struggle on a daily basis and the healthcare organizations that provide evidence-based weight management services.
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The World Heart Federation
As a unifying force in global cardiovascular health, the World Heart Federation believes that heart health is a fundamental human right. Through this firm belief that every human being deserves access to the resources that will make for a healthier heart, the WHF constantly aims to help people live longer, healthier lives.
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Women Heart
For women living with or at risk of heart disease, WomenHeart is their unwavering support system. Through a strong community, expert education, and accessible resources, WomenHeart shines a light on a group that has been neglected for far too long, while extending a helping hand to all women dealing with heart disease.
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*"Chronic Conditions: Making the Case for Ongoing Care". Robert Wood Johnson Foundation & Partnership for Solutions. Baltimore, MD: Johns Hopkins University. September 2004. Archived from the original on 2012-04-23. Retrieved 2009-12-07